Okay, okay, I know it's been awhile but I's been busy!!
Here's the latest greatest...
Affirmations. Visualizations. Darkness & Light. Funny how words of wisdom can come from the most unexpected places at the most unexpected times when you need them most.
The past two Sundays have been like that... little miracles. My move to rehab a week ago Thursday was a whirlwind of packing up cards and photos (thanks to the three Sue's and one John... hmmmm, wait that doesn't sound quite right, does it?), whisking me to my room, settling in and redecorating, then the whirlwind moved on and it was quiet... too quiet. The burn unit is a fairly intimate setting - 8 rooms, 6 nurses, always someone to chat with or make a joke to. The rehab unit is larger and less nurses per patient so I felt somewhat lonely. I missed my other "family" but they have come down to visit me here often so that has eased some of the transplant anxiety.
Friday they wasted no time and threw me right into a full rehab schedule which exhausted and frustrated me because I couldn't do the simplest things that used to come so easily before the accident. And so the tape that played in my head started saying "you'll never" and "what if I fail" and "what am I gonna do 6 months from now" (our family calls it "future tripping") and by Saturday I was a doomy gloomy mess.
I had a couple of friends from the FJR forum that were in town and came for a visit that evening and, in a teary moment, one of the gents who normally is a big old beast of a grumpy bear (but I know also has a heart of gold in the gooey marshmallow center) took my hands and said, "Honey, you gotta have valleys so you can appreciate the view from the mountaintops and you gotta have darkness so you can appreciate the light of the sunrise. You're gonna fail because without that, you won't succeed. Just try again the next day and the next and the next until you do it because you CAN do it. You're at the bottom of the hill looking up... start climbing." I took his words to heart and reprogrammed the tape. You can do this. It's gonna be hard as hell but you can do this. Focus. Fail. Succeed.
The past week has been a series of ups and downs - I've started to reach out to some of the other folks here - nurses, patients, etc - and make a few new friends. I've had good days and bad days in PT. But I was finding it difficult to really get motivated given the 4:30 a.m. dressing change every every morning (and every 8 hrs. daily) was really messing with my sleep and I was getting exhausted again.
Yesterday, they put what's called a V.A.C. System (
https://www.kci1.com/KCI1/vactherapy) on the two wounds left on my legs (I kinda feel like a borg!) to increase the healing (one of them will need a graft at some point). This also means dressing changes only M/W/F at 1 p.m. so no more middle of the night wake up calls - yippee!! But it seems Saturdays are my low days and the little things from the week catch up and I let it all out (an emotional vomit as it would be).
My folks came down as well as my friend Kendall so they got to be the recipients and patiently listened to my tales of woe with love and compassion and words of encouragement, bless them. Saturday night I got the first full night's sleep in weeks so felt just a wee bit better about the world on Sunday.
I ran into a young man who had been a former patient of the rehab unit who had come to stop by and say thank you to the nurses who had helped him so much. We chatted about his experiences and it was nice to hear a success story.
As he was leaving, one of his friends, a young man who looked to be no more that 20 or so, turned around before he walked out of the room, looked and me and said, "Affirmations." I was a bit speechless for a moment as the word came out of his mouth as if from another energy source but speaking directly to me. He continued... "Make affirmations and write them down... what you WILL do, what you PLAN to do, how you CAN do it... write them over and over and say them to yourself every day and it will happen." And with that he smiled and walked out of the room. And they were words that just hit me at the right time and I vowed to make those affirmations and make them come true... and also to allow myself the time to do so (patience is not one of my virtues!
).
Sunday we sat outside and enjoyed sandwiches on a beautiful autumn day. One of the other patients stopped by to say hi and we chatted a bit and he brought up some of the things that helped him on his journey and one of the things he talked about was visualization... actually seeing your injuries healing, seeing yourself walking, seeing what you WILL be able to do. Today, after my guests left, I laid down to take a little nap and as I drifted off to sleep, I had this image of all these electrical currents (kinda like little "zaps") - bright, colorful, beautiful - that were infusing me and I knew that it was the energy of all of you out there - your thoughts, prayers, Native American dances, roads, lives - helping to heal me and make me whole again.
I'm viewing this from a dancer's perspective... it takes months to train to be a top notch dancer and so, given my dance background, I will look at this from my dance point of view. I remember when I couldn't get things in class but with work and perserverance, voila! And so it shall be with this "training" I will be engaging myself in.
As I drift off to sleep tonight, I will visualize the affirmations that I want for myself. I'll start small but have a few big ones for later as well. I will focus on the positive and work hard... there are gonna be good days and bad days and I accept that. And I continue to be amazed and feel so very blessed to have each and every one of you in my life... keep sending those "zaps"!
Today I will do the very best I can.
With love always,
Tyler