Compassion. Funny how we can find it and give it in spades to others but be so stingy with it for ourselves.
After last week's revelations, I started the week new and fresh but was still fighting the negativity I felt toward my legs. I would look at them and think how ugly and horrific they were... who would ever want to look at these things? So I called a good friend of mine, Mary, who always is able to draw things out that are within myself that I just lose track of or didn't even know were there.
I was in tears saying how much I hated my legs... they were weak and didn't work the way I wanted them to. Our conversation went something like this:
M: Ok, so your legs are the weakest part of your body... what is the strongest part?
T: My heart.
M: So what does your heart say when it looks at your legs.
T: Oh, you poor babies... everything you've been through and you're still hanging in there with me! And I loved them at that moment... I found compassion for myself and my body.
That afternoon, in my regularly scheduled PT appt, I stayed up in the standing frame for 10 minutes (longest up to that point was 5) and then, drum roll please... I walked. It was between two parallel bars about hip height (using the hands/arms to balance), was pretty wobbly, about 8 steps but I WALKED. Then I sat back down in my wheelchair and did what any normal blooded woman would do... I cried. Tears of joy, elation, surprise, gratitude, and, yes, compassion. I still have lots of hard work to do but know that I can do it.
On the medical front, we had to abandon the VAC System as it was causing a bacterial infection on the grafted skin under the dressing (little white zit things... icky!). Once we stopped using that method, the infection cleared up right away. So it's back to dressing changes three times a day... oh well, it was kind of a pain in the butt being attached to a machine with a bunch of tubes and leak alarms that would go off at 3 a.m. so I don't miss it too much.
And I may be getting sprung soon! Oct 29th was the date mentioned but it may be earlier depending on insurance approval. My surgical doc wants me to go home, continue rehab and get stronger before they do the skin graft on my left side that will be needed. She's concerned that if we do it now, it'll set me back (I'll have to be in bed for 5-7 days after the graft) so she wants me to come back in a couple of weeks. There are times when I think I can't do all of this for another 3-4 weeks but then I remember I don't... I just have to do it right now.
So that will mean a flurry of figuring things out - in home nursing care, rehab stuff, etc. but it will be so lovely to have a little bit of freedom. I'll be staying with my friend, Sue, who has graciously offered to let me hang at her house since it's more wheelchair friendly than my 2-story townhouse until I get stronger and can manage stairs.
So my lovely extended family, that is the latest update for this week. Stay tuned for the continuing saga of "As Tyler Turns."
Much love,
Tyler
P.S. Please know that I read and and am grateful for every one of your posts and messages and wish there were more hours in the day to reply to everyone but for now it will have to be living vicariously through the internet!